Conference language: English
International patients welcome
The whole conference venue is barrier free
Registration for the patient´s workshop is now open.
Topics Patient Workshops:
As in previous GCOM meetings, there will be a Patient-centered Workshop at the 3rdGlobal Conference on Myositis 2019 in Berlin which aims to provide a chance for patients and patient organization representatives for direct interaction and exchange with internationally renowned experts in the field of myositis.
The Patient-centered Workshop will take place on Thursday 28 March 2019 from 14:00 to 16:00 Mrs Silke Schlüter, chair of the patient organization German Myositis Group, and Dr Jens Schmidt, Neurologist at the university hospital in Göttingen, Germany will moderate this session.
We are happy to announce that this year Dr Oceane Landon-Cardinal, rheumatologist at the University Hospital Montréal, Canada together with Dr Christopher Mecoli, rheumatologist at the Johns Hopkins University, USA and Dr Rohit Aggarwal, rheumatologist at the University of Pittsburg, USA, will give an overview on Patient Reported Outcome measures (PROs) in the first part of the session. This will cover the following topics:
- How to assess PRO
- PRO in IIM: where do we stand?
- e-technologies in IIM
- Devices in IIM
This will be followed by a 1 hour Questions & Answers Session where patients and patient organisation representatives are very welcome to address the professional experts directly with their questions about myositis.
In case you cannot participate but still have questions you would like to ask, you may send them beforehand to Mrs Silke Schlüter via e-mail: firstname.lastname@example.org. Please send your questions until 05 March 2019.
Patients and patient organization representatives from Germany, the Netherlands, Sweden and the UK have confirmed their attendance at this year’s GCOM as yet. To emphasize our wish to make GCOM a source of information and a place of lively exchange for both professionals and patients/patient organization representatives, we kept the registration fee for non-professionals at a minimum.
On Saturday 30 March 2019 from 11:15 to 12:00, the Patient Session led by Dr Mazen Dimachkie, Neurologist at the University of Kansas, USA will provide a platform for networking and for patient organisations from different countries to present themselves to the audience and give an overview of their work.